Monday, July 6, 2015

Somewhere over the rainbow...

This morning I woke up to thunder and tried to make meaning out of it.  Prior to June 25th, I would just of assumed it was a summer monsoon rainstorm we sometimes get in the desert, but now I look at it differently and try to find meaning... I guess that is me searching for understanding, for a reason, why this happened.  Jarrett reminds me it not to ask for understanding or the answer to the why.  We may never get it.  I listen and understand what he says but I still can't get past it.

I laced up my tennis shoes and went outside as the rain fell softly.  I took off and felt the pain of sore muscles, muscles that haven't been used in months.  Strangely the pain from the sore muscles feels good, for once it is a different kind of pain and I welcome it. 

The rain fell softly while the thunder and lightning made music and lights in the sky.  It felt good to run it in.  It was the visualization of how I've felt these past 11 days.  Running down the canals I asked God why this had to happen and used my inferior human brain to find an answer... obviously I am inferior, there seems to be no good reason for why I would be blessed with getting pregnant after all those years of trying, only to have my greatest hope and dream dashed and my living, breathing and fully, perfectly formed son taken from my arms.  I just can't understand it.  

As I ran I searched the sky, begging Noah for a sign.  Today is another tough day... these days everyday is.  I begged Noah to tell me he is okay.  Will I be okay?  Will our family be okay?  I feel so unsure about everything now, I don't know if I can trust the answers I form in my mind... "I hope so." 

The rain started to fall faster as the sky continued to make noise.  I reached my point to turn around and after searching the sky and pleading with God and Noah to give me answers, I turned.  There it was... I stopped in my tracks and couldn't control my reaction.  I sobbed, and wanted to fall to the ground, but didn't my eyes to leave the beautiful image in front of me.  The tears coming so fast, my vision became blurry.  Not wanting to miss a second of it, I wiped the tears away and looked to the sky for comfort. 


I stayed in that spot and watched the rainbow for a long while, and then I decided I had to text the picture to Jarrett.  I looked down at my phone, sent him the picture and looked back up.

When I looked back up in the same spot the rainbow was, it was gone.  I had wanted to stay in that spot forever, to have that rainbow follow me back home but it was gone.  I felt again, Noah was telling me he was okay.  That I need to be at peace with him being in Heaven.  He had given me my sign like I begged and pleaded for.
  
And as I took off running again, I couldn't help but think that the image of the rainbow Noah had given me today was so much like the rainbow sign he gave me on June 25th, so soon after his passing.  
I returned home and posted the picture of the beautiful sky I had seen this morning to Facebook.  Not long there after one of my friends who lives down the street sent me the following text... 
"Angie- you should know I was up early and running this morning as well and was looking for a rainbow, and never saw one.  I kept thinking there's got to be one.  Noah sent that just for you.  I know it."  
Her text warmed my heart and added to the comfort I got in seeing it for myself.  

I don't think I'm ever going to get the answer to my question of why and I hope someday I can come to terms with that.  I used to be a person who'd planned my life out months in advance; even ask our parents, I had the rest of this year planned out in a calendar, printed and shared for our family to see. They say losing a child changes a person and so far I couldn't agree more.  Gone is the person I used to be, planning out our life in advance, now I just try to get through the day in front of me.

What I do look forward to, and use as motivation to keep going is that someday I'll hopefully get to see Noah again.  Until then, I'll just have to keep looking for signs... somewhere over the rainbow.  

Until next time,
Angie

Sunday, July 5, 2015

Noah's birth story...

**This point contains lots of TMI info, so I caution anyone not interested... just skip this post.

*I started this blog post before Noah's passing and I've decided to leave the tense of the verbs the same; for while he is no longer here on this Earth with me, a part of him will always be with me.  And now, the story of Noah's birth...

Before too much time passes I want to make sure I record the story of Noah’s birth.  I’ve follow many mommy blogs and when we learned we were pregnant, one of the million things I looked forward to was recording the story of his birth.  I think as an “infertile” the gift of being pregnant and giving life is something I never took for granted.  It was always a gift I longed for.  And, while not the way I hoped or planned it to be, I was given that gift and his name is Noah.

As we know from previous posts Jarrett shared, my water broke early in the morning on Monday, June 8th.  I had been to the ER earlier that weekend (Friday night/Saturday morning) with contractions and what I thought was leaking amniotic fluid.  After checking me out they said I had a UTI and sent me home with medication.  Little did I know less than 48 hours later, I would be back; this time in labor.  I took the rest of the weekend easy pretty much lying down the entire time.  I pretended to ignore the contractions I was having and hoped they would go away.  I really hadn’t been sleeping for weeks/months, so on Sunday night when I couldn’t sleep again, I wasn’t too worried.  That was, until I was lying on my right side, felt a stronger contraction, heard a pop, felt a pop and jumped out of bed to find fluid running down my legs.  I immediately yelled for Jarrett to wake up and that we had to go to the hospital immediately.  While I have never been pregnant before, I was 100% sure, my water had just broke.  It was 12: 53 a.m.

Within 5 minutes we were on our way to the hospital and I begged Jarrett to drive faster.  I prayed for God’s help and sent our family a text saying, “My water just broke, please pray for us.”  By the time I had arrived at the hospital my contractions were 2 minutes apart.  The nurse came in and hooked me up to the monitor to get our baby’s heart rate. Like always, Noah’s heartbeat was strong and consistent.  They were also monitoring my contractions which continued to get stronger and close together.  The first doctor who came in said, we are going to move to you Labor and Delivery as soon as we have a bed open up.  He explained that because we were only 23 weeks pregnant, they would not take any measures in saving our baby.  It was the first of many terrible conversations we were forced to have, conversations no parent wants to hear.  Looking back now, thankfully another woman came in who was, for whatever reason, moved to Labor and Delivery in front of me, and I stayed in triage.  This resulted in them giving me a shot of something (I wouldn’t recall the medical name of it probably even if it was said multiple times) but the medication did what it was supposed to and my contractions decreased to around 10 minutes apart.  The next time the doctor came back in he said, “I think you’re stable enough, you’re going  to go to the Antepartum unit.” 

At 5:30 in the morning, I was moved to Antepartum, a unit I had never heard of but would come to be my favorite unit right next to the NICU at the hospital.  As they moved me over from triage to the Antepartum unit by wheelchair, the nurse said, “This is going to be your last ride for a while, we want you to stay in antepartum for as long as possible.”  At the time, I had no idea the impact that statement would have for me today.  I crawled into the bed that would become my entire world for the next 5 days.  The nurses came in and started connecting me to all sorts of wires, fluids, antibiotics and our saving grace medication…. Magnesium Sulfate.

With the rupture of membranes (the amniotic fluid), the mom and baby are at heightened risk for infection which is often why pre-term labor begins, I’ve learned.  So I was pumped full of antibiotics continuously for several days.  And when the entire list of IV antibiotics had been exhausted I was given an entire regimen of pill form antibiotics. I was also started on 3 grams of Magnesium Sulfate an hour.  As first I felt extremely calm as the medication was administered.  It was only slowly (at least to my account) over the next several hours that the effects of the powerful drug took effect.  If I’m being honest, I really don’t remember Monday at all.  I remember a few visitors coming to see me and I remember being so tired.  I remember as the day progressed my symptoms increased, at one point I told Jarrett, I can’t feel my mouth and I can’t lift up my hand even though I’m trying.  With all the medication as well as IV fluids they were putting into me, I had to get up every 45 to 50 minutes to use the bathroom.  As the day progressed, I remember several times Jarrett picking me up from the bed and hauling me to the bathroom.  I remember my head flopping to one side and resting on the tiled wall of our bathroom.  Jarrett would then pick me up as I had no control over any part of my body, help me take care of myself, carry me back into bed, adjust the many pillows helping support my body and cover me back up.  By the early evening, I remember turning my head to the right where Jarrett was sitting in the chair he lived in for a week and I said, “I’m getting too tired to breathe.” 

Upon hearing that, Jarrett called the nurse back in and shared what I had just said.  I’m not exactly sure what happened next but several hours later, I learned they had lowered my dose to 2.5 grams instead.  It was exactly what I needed.  This amount of magnesium made me feel comfortable, controlled the contractions and gave me more control over my body.  For the next 4 days I laid on my left side, got up every 45 minutes all day and night to use the bathroom and prayed for God to let me lie there for the next 10 weeks.  Doctors, amazing nurses, visits from family and friends filled the days which seem to pass quickly.  The nights were harder, I think the uncertainty is scarier when its quiet and there’s more time to think.  Over the course of the 4 days I met some wonderful nurses who came to check in on me regularly, even when they weren’t assigned to me.  Each morning and evening for at least an hour, I would be hooked up to the monitor to see how Baby Noah was and to watch for contractions.  Over those four days I cherished every movement Noah would make inside me as it provided me reassurance that he was still okay. 

On Friday afternoon I had noticed that I was warmer than I had been the several days before.  I didn't think too much of it and continued lying on my left side.  It wasn't until Kristal came on duty at 6 p.m. that evening that little did I know but our lives were about to change.  She came in an examined me, took my blood pressure, and my temperature, checked my stomach to see if I had any pain and then told me she'd be back in an hour to hook me up to the monitors.  I had been having contractions, and they were definitely getting stronger and more consistent than they had been the days prior, but I tried to ignore it and thought the magnesium would keep it all under control.  As was so often the case, I had some visitors from two of my closest friends and my mother in law was with me while Jarrett ran home quick to shower.  Jarrett recalls now feeling his ears burning and a unending feeling his stomach that he needed to get back to the hospital as quickly as possible.  We had a great conversation and I did my best to hide when the contractions would kick in.  Kristal came back in at some point and hooked me up to the monitor.  With each session of putting Noah's heart beat on the monitor, they had to place the sensors lower and lower.  I told Kristal, he is very low tonight.  After some trying she found his heartbeat, got it situated and left the room telling me she would monitor me from the nurse's station.  We continued to talk and as my mother in law was sitting closest to the monitor she made comments about how his heartbeat was in the 170's. Where in the past it had always been in the 140's, I thought it seemed too high but didn't want to cause any alarm.  Soon my friends left and I told them I'd probably be lying here over the weekend and they were welcome to come back anytime.  Jarrett had returned by this point too and was back in the room and my mother-in-law decided to head back home too.  

Not two minutes after our visitors left, Kristal was back in the room.  She asked me how I was feeling and then proceeded to tell me she had been monitoring Noah's heartbeat and that he was showing signs of being stressed and possible infection.  His heartbeat was getting too high and every time a contraction would happen, his heart rate would drop significantly.  She said, "I'm afraid were going to have to have him delivered.  I've called your OB to come talk with you."  They are also going to come and do another ultrasound.  Within seconds the lady was in our room and performing the ultrasound on my stomach.  As she finished I asked if I could go to the bathroom and tried to bend my body to get up.  She said, "NO, you can not get out of this bed.  You can use a bed pan.  I knew Noah was low, but when she said I couldn't get out of bed, I wondered just how close he was to coming out.  I used the bedpan while lying in the bed and prayed to God to keep him inside.  I looked to Jarrett and begged with me eyes to provide me some reassurance.  He held my hand as the women gathered up her stuff to leave.   

She left and no sooner my door opened again.  The doctor on duty that night was Dr. Holler, and she came into our room a few minutes after Kristal was there.  She came in and shared the same news Kristal and told us.  As one can imagine, Jarrett and I were scared.  We thought everything had been fine just a few hours before.  Jarrett asked if the magnesium could be turned back up to stop the contractions and what else we could do to keep Noah inside.  We knew what the odds were for complications and survival rates from the few days before, but we had heard success stories of women lying in antepartum for many weeks, up to 10 weeks successfully keeping their babies inside.  We wanted desperately to be one of those stories.  Dr. Holler explained to us that a healthy baby born early was better than a sick baby born a few days later.  She said, for Mom's sake and the baby's, I think we better move to delivery.  We asked to have the neonatologist come back and talk to us, for we were just hours shy of delivering a 24 week baby instead of a 23 week one.  Dr. Wang from the NICU came down to talk with us and she didn't have very promising news.  As she left, we felt even more scared, with our hopes cracked and our hearts so uncertain.  Once again Kristal was there, she restored our hope by giving us encouraging words and told us again, there is always a reason to have hope. 

She asked us what questions we had, she must have been able to see the scared looks on both of our faces.  I asked, "Kristal, we thought we had more time.  I don't even know what labor is going to be like.  Can you please tell me?"  She smiled and explained the process clearly with descriptions we could relate to, and all the while telling me I was strong enough to get through it.  She said, "Angie, seeing how well you've tolerated these contractions so far, I know you can get through labor without any medication."  She said she thought it would be important to get Noah out as quickly as possible and without any medication, sometimes labor progresses faster.  She held my hand and looked into my eyes, "You can do this." 

She then released the brakes on my bed and started pushing me out into the hallway, just as she was alerted on her call radio, that they wanted me to wait... given the early arrival of our son, they wanted me to be in a larger delivery room as there would need to be more people there.  I could tell Kristal was frustrated that they were going to make me wait, but she never said anything and pushed me back in the room and applied the brake.  Just then a women popped her head in the room, and asked if we'd like to pray with her, a chaplain at the hospital.  We of course agreed and she came into our room.  We briefly shared our story and it was clear she cared deeply for us and our precious son. Her name is Jill and the story of how she became intertwined in our lives, I'll share later.  She prayed for us, for a safe and healthy delivery of our son and asked God to bless us with a healthy son.  Her timing was impeccable for as soon as she finished, Kristal was back in the room telling us it was time to move to Labor and Delivery room 17.

As they pushed me and my "home" for the last 5 days down the hallway, I remember each and ever sign we passed.  I remember feeling nervous and yet a tiny bit excited as we entered the doors of labor and delivery.  I always wanted to be a patient in this department and finally I was getting my chance... thanks to Noah.  As the extra wide double doors opened, images of babies appeared along the wall.  I told myself to be prepared, my baby would be much smaller than those cute images on the wall.  I just prayed he came out and was alive.  No one told me if that would even be possible for sure.  We turned a corner to the right and another button one the wall was hit as the door to our delivery room opened.

Jarrett was very nervous by this point and I did my best to tell myself to be calm.  Kristal asked me how I was and I told her okay, she said, "You seem so calm."  I told her I didn't know how to act but was trying to remain calm for Noah.  As we got into the room, they pushed my bed up against the delivery bed and asked me to move over.  I slid to the next bed and soon I was being hooked up to the monitor again.  This time it was definitely harder to find Noah's heartbeat and I worried something was wrong.  Kristal then gave me an injection of a new round of antibiotics as they suspected infection.  I remember feeling the antibiotic being pushed through my veins, it was clear they were trying to give it to me as fast as they could.  It was another sign to me that Noah was making his debut and it seemed to be coming faster than we thought it would.  Kristal then said, "I'm going to stop the magnesium, your contractions are going to come sooner and get stronger."  I looked at the clock, it was 11:23 p.m.

A few minutes after the magnesium stopped a nurse walked in and told me our parents had arrived and she wondered if she was suppose to let them in.  Jarrett and I had decided we wanted it to just be him and I in the delivery room, to which the nurses and doctors on staff agreed since we were already going to have an army in there trying to save our son.  We asked the nurse to escort them to the waiting room and we would give them an update as we had them.  Little did we realize they were in the dark about where things were and wouldn't hear anything until Noah had arrived.

Kristal was right as soon as the magnesium was turned off, my contractions picked up immediately.  They were coming every two minutes and they were painful.  I remember lying on my left side (yes again), as they seemed to be more tolerable when I turned that way.  There was a hook on the ceiling in the corner of the room that became my focal point... every time a contraction would come I would squeeze Jarrett's hand with my one hand, hold onto the bed rail with the other and stare up at that hook like it was a labor coach telling me I could get through it.  

Within a few contractions, I could hear Noah's heart rate get slower and slower and at one point it got so low Kristal said, I need you to put this oxygen mask on and breath slowly.  I need you to breath, do NOT hold your breath.  I could tell from the seriousness in her tone, the oxygen wasn't for me, it was for him.  Jarrett, a constant watcher of the monitors could tell right away his heart rate improved.   I'm not sure what its like to watch your partner go through labor, but Jarrett did a great job, even though I could tell he was scared and nervous.  Between contractions he paced back and forth but was right back at the bedside helping me through.  

At one point the contractions seemed to be coming consistently and I told Kristal I really wanted to push.  She had told me that I hadn't gotten to the "mean" stage yet so she didn't think it was time.  She kept asking me if I felt like I had to go to the bathroom, "like you have to go number 2" and while I felt pressure and like he was coming, I didn't feel that.  I did ask her to check me and she did.  She said, you are dilated to a 5.  Less than an hour earlier, when the ultrasound lady was in my room, she told me I was dilated to a 2.  By this point Kristal had given me a birthing peanut (isn't that a nice name) to put in between my legs.  She said it helped to speed along labor.  I was now lying on my left side with a peanut holding my right leg up in the air and the oxygen mask pumping 100% oxygen into my body.  And the contractions were getting stronger and closer together. 

I continued to focus on that hook in the ceiling as Kristal reminded me I was doing a good job.  I remember at one point during a very strong contraction, a contraction that felt like my insides were being tightened in a vice grip, she asked me if I wanted an epidural.  I remember rolling my head back to her who was on the right side of the bed and giving her a look of, "I'm in excruciating pain" but I didn't answer.  I remember her telling me it was better if Noah came out quickly and I didn't want to anything else to put him at risk.   As the contraction eased I asked her if she thought I should get the epidural and she said, "Angie I think you can do this naturally...  you are dilating pretty fast and I don't think you're going to have to get to a 10 to get him out.  I asked her to check me again.

It was 12:45 a.m.  We had made it to 24 weeks and when the recognition was made, we smiled. I wished it was 34 weeks but everyday counted they said and 5 days more meant, the doctors would step in to help give Noah a fighting chance.  

Kristal checked me and just as she was measuring to see how far I had dilated since the last time, a contraction started.  By this time I had started the low moan, that Kristal had told me about.  I tried my best not to be the screaming woman we all see in the TV shows (although there's nothing wrong with that if anyone reading this was a screaming labor woman-- I say after going through labor you can do anything you want, anyone who goes through labor has a free pass in my book).   When the contraction took hold and she was measuring me it felt like I was being hooked and held up on a weighing machine like those huge fish they pull out of the ocean... I can't imagine the fish find it very comfortable... and it wasn't comfortable what was happening to me either.  In fact, it hurt like H&*LL.    I begged Kristal in my mind to tell me it was time to push.  Before she could tell me how far I was dilated, I announced, I feel like I have to go to the bathroom, yep number 2... can I push now?  I was trying not to get mean.

Kristal said I was dilated to an 8 and that when the contraction took hold Noah's head was right there.  I think you could push she said, but let me call the doctor.  She called on her radio and soon Dr. Holler was in the room.  She then examined me  and said, "Yes, I feel him and he's right there, but I'd like you to get an epidural because I think it will help with pushing him out... we don't want you to push too forcefully as it can harm him, so let's get an epidural as it was more consistent and easier for him."

"Seriously?" I thought, "Why didn't I get this two hours ago."  but at that point I was 100% trusting in the doctors and what ever was best for him, I'd stretch my body into two pieces if that would have helped him.  Even though I wanted to push like no other, I laid flat on my back, breathed slowly into the oxygen mask and did my best to focus on that damn hook in the ceiling... I'd come to despise that hook by this point.  A few minutes later, a woman in labor's favorite doctor in the whole world arrived with a needle long enough to shoot up my entire spine.  Still feeling like I could have reached down and touched Noah's head, the doctor told me to sit up, put my feet over the side of the bed and hang there while he scrubbed my back, and inserted the needle.  He was on the left side of the bed and I hung off the right.  Jarrett had moved around to the right side and held one of my hands, while Kristal grabbed my other.  As he scrubbed my back and told me step by step what he was doing, I thought, this must be another painful thing since Kristal grabbed my hand.  The doctor told me as he was inserting the needle to tell him which side I could feel it, as he inserted it, I said right and then I said, "I can't tell, I don't feel anything."  I learned a few seconds later, he only asked me that question to distract me.  In a swipe of his hands and a tossing of his supplies, he was done.

I laid back and instantly felt relief.  It was like I was sitting on the beach drinking a pina colada.  Where in the world had this doctor been and why would ANYONE want to have a natural labor.  Seriously, ALWAYS GET THE EPIDURAL.  There is a good reason for modern medicine, an epidural is one of them.  ALWAYS GET THE EPIDURAL! 

Dr. Holler returned to the room and soon the end of my bed was being removed.  The put up the stirrups and soon about 15 more people joined our room for the main event.  The lights were turned on and the heater on the bed where Noah would be placed was turned on.  I knew the moment I had dreamed about my entire life was about to happen and for some reason the nervousness left my body.  I remember it seeming like it was all happening in slow motion.  I tried to record every detail of the birth in my memory.  I realized Noah was making my dream come true and while I wished it was 16 weeks from June 13th, it was surreal, and an amazing as I always dreamed it would be.

Dr. Holler told me on the next contraction that I could push.  Jarrett helped me pull one of my legs back and Kristal the other.  Soon a contraction came and I pulled my legs and pushed.  It was strange and that it didn't hurt, there was pressure, lots of pressure, but the pain was minimal (maybe that's my mind just remembering it now).  Dr. Holler and Kristal counted and then they told me to relax.  She said, I think he'll be here on the next push.  Soon enough it was time to push and as I pushed, it was a second later he came out and she held his tiny body in her hands.  I looked down and saw that the cord was wrapped around his neck three times.  Dr. Holler unwrapped the cord and Noah let out a tiny cry.  It was 1:29 a.m. and IT WAS THE BEST MOMENT OF MY ENTIRE LIFE!  

Dr. Holler asked Jarrett if he wanted to cut Noah's cord.  There were two clamps already on the cord and with a scissors in his hand, Jarrett cut the cord.  It was a moment he and I will remember forever.   Immediately the team of NICU doctors took Noah and raced him over to the bed where they worked frantically to get him intubated.  Dr. Holler told Jarrett he could walk over to them to watch what they were doing and I told him to take pictures.  I could tell Jarrett didn't want to leave my side but he went.  I laid back on the bed and listened to what the team working on Noah was saying.  Dr. Holler was so kind and translated all of their medical talk for me.  She gave me the play by play... they just got him intubated.  They are now checking his vitals.  He seems to be doing okay.  She then said, "You did a great job momma."  It was the first time I had been called a momma since I gave birth.  While I had been a mom for five years, hearing Dr. Holler call me momma after just giving birth, was something so sweet, like chocolate frosting on a chocolate fudge cake... it can't get any better.  

Jarret snapped a few pictures and came back to my bedside to see how I was.  Soon the team was shuffling around and I could tell they wanted to head upstairs.  They wheeled Noah over to my side of the bed, he was wrapped in plastic and already hooked up to a ton of tubes.  They showed me him for about 10 seconds and then they said, "We're going upstairs. Dad, you can come with us."  

Jarrett followed the probably 12 people out of the room and soon it was just Dr. Holler, Kristal and I.  They helped me finish with the post delivery part and told me that it was probably an infection that caused all of this.  They said they would have the placenta tested to see exactly what type of infection was there so they knew how to treat Noah.  Later we found out, that while they suspected infection, they didn't find any in the placenta.  

 The nurses stopped back in and asked us if we wanted to tell the family waiting in the waiting room.  We asked the nurses to go get our family and to bring them back.  Our family recounts that when the nurses walked in they didn't give away any of the news, but said, "We'll let them tell you."

Meanwhile Kristal, being the wonderful person she is, brought me some food. She brought me a turkey sandwich, some apple juice and a fruit and cheese platter.  I didn't think I was hungry but I pretty much ate everything in front of me.  I guess I left the grape stems.  Soon Jarrett's mom and Dad and my mom walked in.  The expression on their faces told us they felt the same way we did getting wheeled into labor and delivery... they were scared, they were nervous but they were hopeful.  They looked at me and I said, "He's here.  He even cried a little bit."  And their tears flowed from their cheeks.  

Soon Jarrett returned to the delivery room and said Noah was doing okay. He held my hand, kissed my forehead and we embraced, for both of us had our dreams come true.  Our son, our greatest dream, he was here and he was alive. 

Reliving the details with our parents was wonderful.  I felt like I had just won the greatest race in the entire world.  Maybe that's hormones that kick in after labor, but I felt so happy, so jubilant.. not since the days when I met Gabriel, Michael and Isabelle had I felt so happy.  

After getting me up to go to the bathroom, Kristal asked me if I wanted to go upstairs to see him.  I of course said yes and soon all 6 of us (our parents, Jarrett, Kristal and I) were on our way to the NICU for the first time.  As we exited the elevators and were wheeled into Pod D, suite 50, I realized I had my greatest dream come true... that dream was to have my son.  And how lucky was I to be staring at him with my own eyes. 
Seeing my son in the NICU for the first time, less than an hour old here.
 While tiny, as tiny could be, he was, he is, perfect.  The best features of Jarrett and mine all combined into our precious NOAH.  

I felt love like no other.  He had my heart from day one.  He's the only one to have ever heard it beat next to his and he will always always have a big piece of it.  He gave me so many gifts and giving birth to him was one of the greatest gifts in my life.

I love you Noah James... you made (you make) me so happy.  I miss you so dearly my son, and while my heart is broken today, on June 13, 2015 you made my heart double in size... and for that I will always give thanks.  

Until next time,
Angie

Saturday, July 4, 2015

A tough day...

I knew today was going to be a tough day and it turns out it was.  Saying goodbye to my family was difficult, as the minutes passed by I could feel the weight of the day pressing down on my shoulders.  Having them here to provide support was nice, my sister's babies were good distractions and it was nice to have them to listen to all the thoughts racing through my mind.

After dropping them at the airport, I wondered, where do I go from here.  I knew Jarrett and the kids were waiting for me at home, but I couldn't stop thinking... "Where do I go from here?"  How do I move on?  I'm still struggling with that.  My family reminds me, its only been a week, be kind to yourself... no one is telling you you have to move on today.

And yet, I want desperately more than anything to have Noah in my arms.  To feel happiness, even a tiny bit of happiness.  This morning I couldn't sleep, so I decided to get up and run... it was almost 4 a.m.  Running has always made me feel better; always, until today.  The last time I ran was in early February and I stopped once we found out we were pregnant with Noah, per the doctors recommendations.  Today I left my house in the middle of the dark sky and I hoped for a twinge of that feeling I use to get from running.  I ran the same route I had run all those mornings just 6 months ago as I prepared for the half-marathon Noah and I did together.  And despite not having exercised in so long, I was able to run the entire way, it was anger, it was hurt, it was pain, it was sadness... that is what kept me going.  And when I returned home, hoping I'd find some endorphins kicking in and making me feel better, I still felt the same way... crushed.  I will try again tomorrow to see if I feel any better, see I'm not sure exactly what to do with myself.

Now that I don't have any excuse not to exercise and all that remains from my pregnancy body is the unbaby belly that reminds me of where Noah used to be, I feel I must try to return to my previous ways.  Even though I don't want to.

As the day went on and I returned home from the airport, we had the kids take a nap to catch up on some of their sleep... we haven't had a scheduled in, well, I don't even know how long.  As the house was quiet I returned to writing thank you's while Jarrett went to our bedroom to "tidy up"  I knew what he was doing and I pretended it wasn't happening.  See just a few weeks ago, I had spent several hours going through the baby clothes my sister handed down to us for Noah.  I carefully folded them, organized them by size and put them into the changing table dresser Jarrett had used as a baby.  It was going to be special for us getting to use the baby changing table that had been his as a baby.  All of Noah's clothes were ready for him to come home, beautiful blankets made especially for him from my aunts and all the little outfits saying "I love my Mommy" and "Daddy's little guy".  Never to be worn, sadly.  Jarrett knew it would be to much for me to go through them so he went through the process of boxing up all the clothes by himself.  He's been so strong for me, as I have been so weak.

He boxed up all the clothes, the reminders of what our life was going to be like and tucked them away, hid by a blanket so the constant reminders everywhere I look are not as painful.

Its been a hard day.  I think today's pain comes from the what if's. What would our life had looked like with Noah in our lives. How would our family dynamic changed?  What would his personality be like?  We will never know.  Tonight as we sat at our dining room table and ate together for the first time as a family of 5 in over a month, I couldn't help but think that Noah should be at the table too.  Unable to get those thoughts out of my mind, my stomach turned, I pushed my plate of food away and had to leave the table.  It too was another reminder of the life we wanted so badly, that we will never get to live.

As the sun was setting tonight, I could feel the weight of the day push down on my back, crushing me.  It was then that I heard my phone beep and I raced to see it.   When I looked at my phone I saw that two of my friends had reached out to me at the same exact time.

One was my friend who has traveled a difficult road as well. I've blogged about her before and her journey to become a mother.  Today was a day she hoped would bring exciting news, and instead she got others.  I had texted her this morning and said I didn't know what else to say other than I was sorry.  I told her I had no understanding for why sad things like her struggle and our loss had to happen but that I would pray.  I also shared with her that I had been praying to Noah to ask God to bring her a positive pregnancy result.  She will be a wonderful mother.  Tonight when she texted me back she shared that since it was a rough day for her and her husband they decided to go out to a restaurant.  She said they sat in the bar area and that the bartender was very nice and at the end of their dinner he introduced himself.  His name was Noah.  She said she was immediately taken aback and that she felt a wink from God.  She said she knows Noah is working with God for the future and that Noah must have heard my prayer. She ended by saying, "Not only is God winking but Noah is too.  I felt it in that moment."

As I thought about my friends message, the tears came as they so easily do these days, but they also made me feel thankful she felt a wink from above.  While I beg Noah to send me signs, I realized tonight my friend needed that wink more than me and her sharing the experience she had, gave me great peace and comfort too.  I hope that while today was a difficult day, she finds hope and comfort in her "winks" from above.

The second friend that texted me was actually a new friend, she was Noah's nurse.  The amazing Lauren who came to the hospital to share in our grief on her day off.  I consider her a new friend as I've clearly shared with Noah's nurses, that I want to say in contact and celebrate happy times going forward. While the loss of Noah is so hard for me, I look forward to building relationships with them and celebrating happy times in the future.  That would be a great tribute to Noah I believe.

Lauren's note was a series of three pictures, followed by a simple note...

When I saw her pictures I raced outside to look for the rainbow with my own eyes.  When I didn't see anything, I walked back in the house and showed Jarrett.  We both cried.  It was then that I realized, that while I didn't see the rainbow with my own eyes, I still find comfort and hope, for the rainbow will always remind me of my son and today's message from Heaven came via my new friend Lauren, from my little angel above.

Until next time,
Angie

Friday, July 3, 2015

Support...

Today was the 8th day I've gotten up and out of bed since my world came crashing down.  It may not seem like much, but to me its seems like its been a million mornings.  To think in just 4 short days, it will have been as long as my baby lived.  It makes me sad but also makes me realize in my mind, in some ways it seemed Noah's life was well longer than 12 days.  Obviously not as long as the lifetime I wanted it to be, but longer than 12 days.  Maybe that's what happens when you live in hospital, maybe that's just a testament to all he accomplished in his 300 hours of life.

There have been so many of you that have carried me, carried us through, that I know I will never be able to say thank you adequately.  For the daily text messages of support, that seem to always come at the right time, just when I feel too sad to keep going, then my phone vibrates and it is you. For the comments that so many have shared about our precious Noah, words so kind, so supportive and offer us understanding, when it seems there can be no good reason for such a loss.  For the hugs when there are no words.  For the meals that so many have provided to sustain us when we don't have the desire or energy to think about preparing a meal.  For the cards, the gifts, the memorials in Noah's honor,.. we read every one, over and over.  For our family... who have been here for us since day one... by our side...who cried with us, who continue to cry, who offer support in ways that a family does.  This weekend they leave and we must learn how to get through this journey as a family of 5.  I dread the moment when we embrace for the last time for this trip and we return home to a much quieter house, and are forced to deal with our grief standing right in front of us.  Having them here, I realized they are my crutch and now I have to learn to walk without... it is scary.

I want to specifically thank my mom, my aunt, my mother and father in law and my aunt Anita and Uncle Andy. Andy and Anita have helped us immensely.  I will never forget the daily visits in the hospital, when you came not because you had to but clearly because you wanted to.  The sincere hope you had in your eyes, that our baby would be okay.  The conversations of daily happenings outside the walls of the hospital that always seemed to drift back to Noah, to us.  The tears we shared when words were hard to find, and the taking of my hand, of holding it, just to say... we are here.  Nana and Papa have been supporting us, and our family for many weeks, long before the stay in the hospital and in the midst of their busy lives, they put their life on hold and were there for us.  My aunt Marjory, decided at the end of May, long before June 6th that she was going to come out and stay with us for a month to help give me the time to relax and care for our baby growing inside of me.  And my mom, the moment we texted her telling her my water broke and I was going into labor (labor 16 weeks early), she responded saying, "Praying" and I responded, "Mom, will you please come out?," ... she was there, getting on an airplane less than 10 hours later to come and be by my side.  She has been there ever since.  The saying is out there, that family is there in times of trouble, but in seeing the support we've been given, I realize just how lucky I am to have the family I do.  For they weren't just there, they took over.  They stepped into Jarrett and my role and ran our family I'd say better than we can do sometimes.  They didn't just be there, they did it all.  We will forever be thankful.

There have been so many of you that have been so wonderful so supportive.  If I'd start listing what everyone has done for us, I'd never stop this post.  

There have been a few thoughts people have shared with me in the last week or so, I wanted to share here as they've stayed with me.

On Sunday at our church for Noah's funeral, the lady from church who helped us planned Noah's details shared with us that the day before they had a funeral for a 96 year old woman who was a gunner in World War II.  She said that the lady had a remarkable life and accomplished some great things.  And then today we have the funeral of a miracle baby who accomplished his purpose in life in just 12 days.  After saying that she paused and said, "That alone is a miracle.  What an amazing being Noah was."  I've thought about her comment many times and wondered what Noah's purpose here on Earth was.  I will always wonder and ponder but here's what I've come up with.  Noah showed me that anything is possible with the help of God.  We were told we would NEVER be able to conceive on our own and yet Noah was living inside of me for more than 15 0 days and he lived here for a little more 12.  Noah's purpose here, I believe, was also to bring more love, prayer and hope into the world.  In sharing Noah's story on this blog, I am so thankful for so many all across this world who thought of him, who prayed for him and whose hope in overcoming great challenges increased.  While sadly he never left the walls of Pod D, the hope and faith he made us believe in were greater than I had ever felt before in my life... and I think others may agree too.  Thinking about those accomplishments, I think Lynn from the church is right.  The impact he made on this world, this earth is remarkable to say the least, and the fact he did all that in 12 days... yes, I'd say that is a miracle.  

Another quote that has helped me through these past few days is this...

An Angel opened up the book of life and began to write the 

date of my baby's birth..


Then she whispered as she closed the book

" He's to beautiful for earth"

 Every time I read this poem, I cry.  I cry because my heart aches to feel him on my chest again, to smell his precious baby scent.  I long for what I never got to have, what I dreamed in the future.  And I can't understand why.

I've told Jarrett, prior to this, I always wanted to live a long life, to be here as long as I could, I dreaded death.  But now I look at death differently. I am not afraid, I do not dread it... I know on my final day here on this Earth, that God willing, I'll get to go to Heaven and not only see him but also see my son.  It is not a bad thing, it will be a day to celebrate.  

Finally I share a quote my sister shared with me and I think it fits perfectly how I feel.  Going out in public has been a challenge for me these last several days.  Earlier this week, on Monday, I tried to go to Gabriel's All Star Baseball game (an honor he was awarded when we were in the hospital and we couldn't be there to support him through).  I was leery of going all day, but felt it my motherly duty to be there for him.  I should have listened to my gut... I was not ready.  I walked to that field and looked around to see all the other families celebrating their child's accomplishments, cheering them on like they were playing in the world series.  I didn't want to talk to anyone, I couldn't be near anyone... instead I excluded myself and sat next to a trailer by the field by myself.  It took everything in me not to scream and say, "How can you all be so happy, when I'm so completely crushed--- can't you see my broken heart. My baby just died."  Instead I sat quietly by myself and wanted nothing more than to be at home.  I realized then, I have to do things in my time.  It was too much for me.  

But life has to go on and I will have to go in public.  I will look for the support from family and friends to help us get through and I will need shoulders to lean on.   When my sister shared this poem, I thought it fit me well.  People have been so sincere, so supportive, so kind... thank you for staying by my side.

Don't Tell Me...
Please don't tell me how I feel,
Unless you've lost your child too.
Please don't tell me my broken heart will heal,
because that is just not true.
Please don't tell me my son is in a better place,
Though it's true, I want him here with me.
Don't tell me someday I'll hear his voice, see his face,
Beyond today I cannot see
Don't tell me it is time to move on,
Because I cannot
Don't tell me to be thankful for the time I had,
Because I wanted more
Don't tell me when I'm my old self you will be glad,
I'll never be as I was before,
What you can tell me is you will be here for me,
That you will listen when I talk of of my child
You can share with me my precious memories
You can even cry with me for a while
And please don't hesitate to say his name,
Because it is something I long to hear everyday,
Friends please realize that I can never be the same
But if you stand by me, you may like the new person I become someday
For he is forever a part of me.



Until next time,
Angie

Thursday, July 2, 2015

Messages from Heaven....

Last Thursday morning, a week ago today, as I looked at my poor baby, so sick and yet still trying to hold on for us, I felt it my heart first, I knew I had to let him go.  When the doctors told us the news of his update, of where things stood, my mind followed in line... I knew it was time, I had to let him go. I mentioned yesterday how I begged Noah to send me signs from Heaven that he was in a better place and is okay.

This is the story of the messages we've received from Heaven.

On Thursday afternoon, June 25, just hours after Noah left this world, we sat in Pod A with our family, all brokenhearted, all devastated and all thankful for the time we had with Noah.  We each took turns holding him and memorizing the features of his tiny body, we would never see grow.

In what has been a lifeline for me the past three weeks, thanks in part to so many of you, my cell phone would vibrate every few minutes with messages of support flowing in as the news of my son's passing trickled out.  It had been a long 48 plus hours and my phone battery blinked that it was almost gone.  I decided to slip out of Pod A for a few minutes to have time alone, and going to get my phone charger was just the excuse I needed to find my moments.

The way the NICU is set up, Noah's life was lived at the end of the hallway, down in Pod D.  When things turned for him, for us, the team, "Noah's team" reserved a room for Jarrett and I at the very end other end of the hall, a nesting room, where we could stay.  It was a tiny room with a twin bed, two recliners, a space for a baby bed and a bathroom.  It became a place for us to rest, 10 minutes here, 30 minutes there, as the doctors and nurses told Jarrett and I we had to take care of ourselves too.  From Wednesday early morning until Thursday afternoon, the NICU became our home.  Jarrett and I walked that long, quiet hallway more time than I can recall.  We would take turns, he would sleep for a bit as I stayed by Noah and our parents who kept a constant watch over him for us, and then I would sleep for a bit while he went to be with Noah.  We never wanted him to be alone.  Back and forth we walked that hall and for some reason, I never saw it.

I begged Noah to let me see the rainbow after this terrible storm of losing him, as a sign he was okay.  I think for me to be able to move on from this, I need to know.  The rainbow has always been a sign for me of things starting anew.  After a rainstorm, the rainbow appears as the dirt has been washed away, as the darkness moving beyond... the rainbow, a collection of vibrant colors, not only brings with it great beauty, but for me peace, hope and the inspiration, things are going to get better.  Maybe that's why I begged Noah to show me a rainbow as a sign.

As I excused myself from Pod A, the pod closest to our nesting room, just a few steps away, I walked out of the pod, closed the door behind me as it was closed off just for us, and I turned to the right to go to our room.  As I turned and took two steps... I saw it.  The picture at the end of the hall, the picture right outside our nesting room, the picture I see now each night when I close my eyes...

There in the distance, the faintness of a newly forming rainbow.  I starred straight ahead frozen in my footsteps.  It was a picture I had passed 100 times before and never, never had I noticed the rainbow.  Warm tears rolled down my cheeks and I knew it, I felt it... it was calming, it was peaceful, it gave me hope, and it inspired me.  I knew immediately it was Noah..."I'm okay mom.  I'm okay."

Without taking one step further I turned right back around and had to go get Jarrett.  He had to feel the peace that overcame me as I looked at the picture.  I walked into Pod A to go and get him, and as I walked back in, I happened to glance at the door next to the larger room where we sat.  Along the entrance was another message from Heaven, it was my son...

Of all the places to have a picture, I'm not sure why it was propped right outside a room normally used for patients.  But there it was, Noah's Ark with all the animals.  Our Noah was named after Noah in the bible.  For Noah in the bible faced a great storm but listened to God's word, trusted his plan and received salvation in the end.  We knew our Noah was going to face a great storm as he came into our world, but we hoped and prayed he would weather the storm like his namesake... And we believe he did.

I called Jarrett over and said, come with me.  I told him, Noah just sent me a sign.  We walked out of the pod, closed the door and took 2 steps. We held hands and stood in front of the picture of the tree with the rainbow.  I whispered, "Jarrett, of all the time we walked passed this picture outside of our door, never once did I see the rainbow."  He sobbed and tried to speak back and as his voice cracked he said, "I didn't either."  We walked back into the pod and I showed him the picture of Noah's Ark, we both cried together again before calling our parents over to see what was guarding our entrance to the room where we mourned.  It was Noah's Ark... it was a message from Noah from Heaven.

Thankfully, Noah's been continuing to give us signs and when I feel my deepest hurt, I think back to the signs he's sent and I find a bit of peace again.

On Sunday evening after Noah's funeral our family went out for dinner as we were not ready to part.  There was a large group of us, 26 to be exact.  At the restaurant they set up two long tables, one table closest to the wall and the other on the outside, closer to the rest of the restaurant.  Everyone sat down and I chose to sit at the table closest to the wall next to my mom at the end of the table.  As everyone talked, a woman walked up to me and my mom.  She spoke softly and Mom and I leaned in to listen.  She said, "My dad is 96 years old and he makes these as a reason to keep going in life.  I saw you and wanted to bring you these... "  She reached her hands up and out toward me and gently set in front of me her father's masterpieces.  She said, "Here are four little angels... for you."


I smiled, said thank you and looked at my mom whose eyes were already welling up with tears.  The lady returned to her table and mom and I looked at one another in wondrous awe.

I asked Mom, "Did she bring this for the kids?" thinking of my sister's kids and ours.  Mom reminded me that there were clearly 5 kids total at our two tables.  Why did she only bring?  Why did she come up to me at the table, when she had to pass by the first table of our family where most of the kids were sitting anyway?

Before we could answer any of those questions, the woman's husband walked up to Mom and I and continued where his wife had left off.  He said, "I want you to know that these angels are not toys, they have been blessed at a church and are meant to serve as reminders of loved ones.  They are to be cherished."  I reached over to the man's hand and touched it gently.  I fought back tears and said, "I have to tell you I write a blog and the blog is called "And with our four angels..."  The man's eyes widened and I turned away to avoid crying.  I then heard my mom say to him, "We just came from a funeral for my grandson.  My daughter just lost her fourth child."  The man reached out his arm and said, "You have my deepest condolences."  He then walked back to his table.

By this point several of our family members had noticed the conversations we had with the man and woman we had never met.  My sister MaeLyn came over from the other table and asked what had happened,  I explained to her what we had just been given and she said what we were thinking... "Thanks for the sign Noah"  MaeLyn said that when the man returned to his table he must have told his wife what we told him because she broke down in tears.

I'm not sure how to explain what happened on Sunday night.  Why the woman came to the table where I was sitting, when others in our group were so much closer to her.  Why the gift she brought us were angels.  Why she happened to have brought just 4, when there were obviously 5 children.  The only thing I can honestly find understanding in, is that it had to have been a message from Heaven from my precious son.

I'm thankful there were 25 other family members there to witness the giving of the 4 little angels, because I'm not sure anyone would believe me.  And yet they were there to receive Noah's message too.  That night when I finally laid my head upon my pillow, I felt comfort, I felt peace and I slept better than any night I had sleep for the previous 6 months.

The angels sit in our house on our mantle looking down on us as we try to live our lives without Noah beside us. I glance at them several time a day and thank Noah for the gift he gave us through those strangers at that restaurant.  I think Noah brought us 4 angels as a reminder that while he is in Heaven, I still have three angels here I need to care for.  While I long for the day when I can be with him again, I need to remember my children here.

I've heard before about people who've lost loved ones and the signs they get that give them comfort.  I never knew if it was their mind leading them to believe the messages in front of them or if it was really a sign.  As someone in the midst of grief and the unbearable pain of losing a loved one, I now know.  I'm not sure how to describe it or how to convince others that it really is a sign.  In the end though, it isn't about convincing others that the sign I saw is a message from Heaven.  The purpose of the message is what I begged Noah to send me in our final hours.... the message from Heaven is clear.  I know you are okay Noah, I know you are living in glory and I will try to move on knowing one day we will get to meet again.

I love you my precious Noah.  Thank you for sending Mommy the messages from above.  I love you forever...

Until next time...
Mommy


Wednesday, July 1, 2015

Noah's team...

He is always on my mind.  I see him, reminders of him, everywhere I look.  Maybe its always going to be that way and in someways I hope it is.  I just hope the pain that is associated with the constant reminders, turns to joy, to comfort, to signs from him that he is okay.

In the final hours we had with Noah, I told him it was okay to let go.  I told him he didn't need to fight anymore, for he was an amazingly strong fighter.  The doctors, nurses and respiratory therapists, they all said it.  Even though they gave him medication after medication to calm him, to sedate him so he could rest easily, our little tough guy would continue to move his arms and legs and reach upward.   My mom said she thinks it was because Noah was reaching up to Heaven.

When I knew it was time to let him go, my heart shattered into pieces, but it became my determination that I didn't not want him to suffer.  I stayed by his bedside as much as I could, I stroked his tiny precious hand, or made the sign of the cross on his beautiful forehead.  His skin was so perfect despite all the "accessories" he had coming from him, sustaining his life.  He smelled so precious, I hold onto that smell like a climber holds onto the side of a cliff.

As I stood by his bedside, I sang, "Twinkle Twinkle Little Star" the song I had regularly sang to him on the way too and from work.  I prayed the Lords prayer, and I repeated endlessly, I love you Noah James... mommy loves you more than you'll ever know."  I had a life time of I Love You's to share in just a few hours.  I told him about all the dreams we had for things we wanted to do together, for the hopes we had for him and how great our life was going to be together.  And after telling him all those wishes, I told him again... "Its okay to let go."

"Noah, mommy wants you to stay with us more than anything, but the Lord is calling you home. When you get to Heaven, Grandma Virginia and Grandma Hazel will be waiting  Let them take care of you, and go be with the Lord.  Noah, Mommy's not sure how we (your daddy, your siblings, and me your mommy) are going to get through this.... I am not sure.  And so Mommy needs you to send me a sign, tell me you are okay.  Please watch over us and send me signs.... I'll watch for rainbows like God gave Noah in the bible.  Can that be our sign?  Please Noah, Mommy won't be able to go on without knowing you are okay.  Mommy loves you so much.  Its okay to go."

Those are the words I spoke to him and begged of him. When the time had come, and all the wires were disconnected, his favorite nurse Melanie and Dr. Hamburg handed me our baby.  As he was pressed up against my chest, Jarrett and I held him as he took his final breath and his heart slowly stopped.  Hearing his heartbeat was one of the first things we got to do when we found out we were pregnant with him.  His heart was so strong, so powerful and so so loving.  It was calming then that as we started listening to his heartbeat as he was first forming inside of me, that his nurse Miss Mel let us listen to his heartbeat fading... beating calmly and slowly, telling us good bye.  While peaceful as we prayed it would be, the tears and heartache unbearable to feel, were comforted only slightly by the feeling he was in a better place, with no pain, no struggles, just love, peace and eternal rest.

After Noah's passing, the medical team let us have some final moments with him.  They were so gentle, compassionate and supportive of us.  They moved us and our parents (who were there by our side throughout the entire time) and let us have an entire pod to ourselves.  We sat in the room dimly lit with Noah, our parents, Jarrett and I and cried.  We sobbed, we admired our beautiful baby that had gone on before us, even though that's not the way its suppose to be.  The doctors and nurses that had cared for Noah came in to share in our grief and to mourn with us.  Dr. Hamburg came in first and shared what she liked most about Noah...She said she had never seen a baby with a more premature face and that he was a fighter through and through.  She took off his tiny booties they had put on him and looked at his feet, saying "He got his feet from Dad."  She then wrapped him back up and said, "My little lifesaver."

The first day I met Dr. Hamburg it was right after lunch and as most days these last three weeks, if we ate at all, it was something quick  and on the run, so I had grabbed a taco on my way to the hospital. Standing shoulder to shoulder with Dr. Hamburg I realized my breath was probably not the greatest so I apologized. She smiled, and said, "My dear, that's why I have a lifesaver, because I just had lunch."  Then she reached into her pocket and pulled out a lifesaver, extending it to me, saying, "You can have my last one." .  I smiled, took her offering and said, "thank you." From that moment, I loved Dr. Hamburg, her first gesture of kindness just like the rest... she treated us like her family.  That night when I went home I stopped at the store and bought her a new bag of lifesavers.  I wrote her a thank you note and told her I thought she would be Noah's lifesaver and how grateful we were for her.   The next early morning I left her lifesavers and the card on her desk in her office.  Dr. Hamburg was one of Noah's great doctors and we prayed for her to be working every shift.  On Wednesday early morning when Noah's health took a turn for the worse, I begged God for the 7 am shift change and prayed Dr. Hamburg, Camilia, Miss Mel and Becky would be on, for they were all some of Noah's best caregivers.  The doctor that had been caring for Noah had told Jarrett and I it was time to give up and to let him go.  We were not ready to believe that.

One of our answered prayers came that morning when Dr. Hamburg rushed into Noah's bedside, gave me a hug and said, "I just got here and heard, I'm going to get updated on whats happened and I'll be right back." Within a few minutes she was by Noah's bedside, giving orders, taking charge and doing everything she could to assist him in fighting, it was clear... Dr. Hamburg was NOT ready to give up on him.  By this time, the team had tried to clear out Pod D not only to give us and our family more space by his bedside, but I think to keep the other babies away from the extra noise and chaos that was in Pod D, bedside 50... Noah's bed.  That entire day Dr. Hamburg did everything she could to help him, stopped at his bedside about every 10 minutes to get an update from the nurses, but always leaning over his bed, touching his tummy, his head, or his hand, and she always talked to him. She'd tell him what they were doing and what she needed him to do.  As helpless as we felt as his parents, watching her work, we felt she was doing for us what we wanted to do, if only we knew how.  Sadly, while Noah showed small improvements, Dr. Hamburg did not see the results she, Jarrett, our family and I hoped for, and by the end of her shift (she extended because of our baby) she walked up to the side of his bed, stroked the fine hair on his precious head and she said, "Well Noah, I've thought of everything I could to turn these things around... I'm not sure what else to do except this...  she reached into her pocked and pulled out a lifesaver... and she set it on the blanket next to him.  

That's why she called him her little lifesaver.  Dr. Hamburg will always be special to us.

Back in Pod A, the next visitor who came to share in our grief was Lauren.  Lauren was one of Noah's nurses who we connected to over similar experiences.  Lauren had walked the footsteps of the NICU like we did as a parent, but thanks to God she had one of the stories we held onto for hope.  Laurent walked out of the NICU with her baby to take home.  I remember sitting in the chair next to Lauren as she shared her story, her bubbly spirit gave me hope that beyond the constant worry the NICU brings, there was life of happiness, of humor, of success.  When Lauren walked into Pod A, in street clothes with a NICU jacket over top, I realized she hadn't' been there to work. With tears in her eyes, mine met hers, we embraced, and she said how sorry she was.  She explained she had called into see how Noah was and hear of the new, she said she had to come in to say goodbye.  Noah's life touched many people outside the NICU, but also many inside.  Hearing how many nurses called into check on him while they were off duty, how many wanted to be his primary nurse, how many cared for our family, makes me so proud to be Noah's mommy.  Lauren stayed by us for a while, holding him and caressing his tiny, soft cheek.  We laughed, we cried together, we hugged again.  Lauren will always hold a special place in my heart because of who she is, how she cared and because of our love for Noah.

Camilia was the next person to walk into our private Pod, just as we were talking about her.  We were singing her praises and as she walked in we asked her if her ears were burning.  Camilia's impact on our lives started early in our NICU journey.  Sadly all the days blur together now, but I will always remember Camila because she began her relationship with us, with Noah, not with medicine but with love.  She walked into Noah's pod talked to Noah like he was the best person in the whole world, and greeted us the same, because we were his parents.... I'm sure she did it to all her patients but in that moment, we felt like we were.  Camila always took the time to explain to us exactly what tests they were doing, she showed us the results, walked us through all his x-rays and called me on my phone to discuss.  She always greeted us with a hug, left us with a hug and told us what a pleasure it was to care for our son.  Back to that early morning when I prayed for Noah's A team to be on duty, Camila came running into the pod, went immediately to the left side of Noah's bed, gave me the tightest, warmest hug I had had in hours, and with tears streaming down her cheeks, said, "I just got in and heard about Noah's turn... I'm so sorry. I was off for a few days, he had been doing so well.  I'm so sorry."  In that moment, she was there as someone who loved Noah, not a medical professional.

Later that morning after she had been briefed on all the things they had done for Noah, she came, sat next to Jarrett, I and our parents.  She sat in between us, held my hand, and cried with us.  I knew what she was doing, by this point I had already realized it was time.  Jarrett, being the cancer survivor when the odds were NOT in his favor, wasn't ready to give up, even though the odds for Noah's survival were not in our favor either.  Camila explained everything they had done and she graciously, delicately and honestly shared her opinion, that it was time to let him go.  I don't recall the exact words, I think that's a person's mind protecting one's heart, but it was clear where we were in the process.  The way she explained it gave us understanding, and it gave Jarrett the reassurance he needed that we had done everything... everything we could to have saved our son.  To our great heartache, God had a different calling for Noah.

Camila's love and gentle approach that had been present with her to our precious Noah, to us, was there at the end too.  When she walked into that pod A, she embraced our son without all the wires and tubes and she swooped him up into her arms.  She smiled at him like he was the most precious baby she had ever seen.  She kissed his forehead and thanked him for being such a fighter.  Then she turned to Jarrett and I and asked, "What do you love most about him?"  Jarrett and I weren't sure how to answer, I don't think we had taken the time to find what we loved most, we loved all.  She then asked, "What's your favorite feature of his?"  She continued by going on to identify all the features Noah got from Jarrett and what he got from me.  She said Noah had Daddy's hair and hairline, and his feed.  She then looked at me and said, "Noah has mommy's nose, lips and the shape of his eyes."  She then went onto say how about his ears.  Some babies are special in that they actually get one of mommy's ears and one of daddy's."  We then went to look at Noah's ears and to our surprise we found out Noah was one of those special babies, his right ear was Daddy's and his left was Mommy's.  I'm so thankful Camila took the time to point out Noah's features.  Given that he was our first biological child, one of the things Jarrett and I looked forward to most was getting to see how a child of our own blood would look.  In the chaos of what has been these last few weeks, we never really took the time to stop and think about it.  Camila helped us to remember and we will always be thankful for that.  Camila is one of God's people, and we will always love her.

The other person in the room with us throughout the final moments we had with Noah was our beloved Melanie.  In our days in the NICU so many people grew places in our heart.  Miss Melanie not only grew a place in our heart, she grew into our family.  Miss Melanie cared for our Noah, her Boo Bear, like she was his mother.  Where I couldn't help to know what to do for our son, Miss Mel did. She loved him from day one and she loved us the same.  Our connection was instant and I knew within minutes of meeting her I wanted her to be one of Noah's primary nurses.  Melanie and I connected on ways beyond the NICU.  Our conversations seemed to be that friends for many years would have.  She asked about us, she wanted to know, she cared.  On the second to the last day of Noah's life, I sat in the chair on the carpet path running through the pod, as I watched them change Noah's lines.  Next to me was our parents and there were people all throughout his bed space.  I stared straight ahead as the thought of guilt ran wildly throughout my body.  I feel guilt for not being able to carry Noah longer, I feel guilt that I did something wrong to cause this, I felt guild that I had gone home that night from 11:30-3 and that he had taken a turn for the worse when I was gone... the feelings of guilt running wild as I sat stone face, watching them do what they could to save my son.  When Melanie finished changing out the lines, she walked up to me, touched my shoulder and said, "Mom, can I talk to you for a few minutes."   I of course jumped up thinking she was going to give me an update on Noah's care, and followed her out of the pod.  We walked down the hall a few steps, she stopped. faced me, leaned in and looked straight into my eye.  She said, "Angie, I know we've only known each other a short amount of time, but I know exactly what you are thinking.  This is not your fault, you cannot feel guilt.  You did not do anything to cause Noah's sickness.  I need you to push those feelings out of your mind.... this is NOT your fault."  I'm not sure how she knew what I was thinking but she shared words with me that were exactly what I needed to hear.  She then called Dr. Hamburg over to reinforce the message she had just given me.

Moments like this with Melanie were constant, she knew just what to say, how to support and love us.  Melanie gave Noah his final bath and dressed him in a perfect sailor outfit for his final moments with us.  When it was finally time to walk out of that NICU for the final time, the only reason why I was able to do it was because of Melanie.  I know where Noah's body was going, and it killed me, it did.  I asked Melanie to embrace him close, to kiss him goodbye for me and to tell him how much I loved him.  I knew she would do it and that if it couldn't be me there to tell him goodbye, I wanted it to be her.  Noah loved her.  Later that night, Melanie texted me and told me she had done just what I asked.  She said, "Angie words can not express how grateful I am to have been a part of this journey with your precious Noah and his amazing family.  My heart was so heavy throughout the night as I thought about you and your amazing family.  I creid until daylight just praying for you all.  I've had many patients over the years who've touched my life leaving tiny footprints in my heart.  Noah left a much bigger impact! I kept my promise to you, hugging and kissing your precious son when I went to the morgue.  I held him close, telling him how much his mommy and daddy loved him, what  blessing he was and to watch over you and your family.  I also told him how strong he had been, such a fighter. I reminded him to please send rainbows your way, he's still with you. I let him know how much I love him and how much joy he brought to so many in his life.  Thank you for allowing me to care your for miracle; it was an honor!  Love you all"  I mean, what other words are there for such a wonderful woman.  I love Melanie like she's my sister.

There are so many people in the NICU that were wonderful, we will never forget them.  I told Jarrett, losing Noah is our greatest loss, but also not getting to go back and see the team that cared for him is like suffering another loss.  We've been back to the NICU a few times since Noah's passing and I can't help but feel so much comfort being there.  I understand it is hard for some parents to ever go back and yet, I feel like its' one of the only places I want to be.  Yesterday morning after I shared how I was feeling, Jarrett and I took thank you cards and some food up to the team there.  Just as we were greeted in our first minute at the NICU we were greeted the same way again.  With loving embraces and sincere care.  The NICU at Banner Dessert Medical Center will always be a safe and loving place to me.  While it is the location of my greatest loss, it is also the place where we found the greatest support and love.

Noah's team of care providers was exceptional to say the least.  I will always love them and always be thankful for them.

Until next time,
Angie

PS:  Thank you for the supportive messages sent after my post yesterday.  It was raw, it was hard for me to write and to share, but it was how I feel.  I appreciate the support.